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Endometriosis.org is the global platform,
which links all stakeholders in endometriosis, and facilitates
collaboration and information sharing between women
with endometriosis, physicians, scientists, and others
interested in the disease.
This international collaboration and
exchange of experience enables us to deliver up to date,
evidence based, information and news about endometriosis.
Our goal is to empower women with endometriosis
to participate fully in making informed decisions about
their treatment options.
Endometriosis.org is not for profit.
The income generated from Google ads,
Amazon.com referrals, and any other advertising, is
used to pay for the hosting of the site, updates, and
general maintainance. This enables us to provide a free
informational service to women with endometriosis anywhere
in the world.
See also our advertising
policy and our strict copyright
policy.
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We
will never charge anyone for obtaining information from
this website. However, if you would like to make
a donation to the World Endometriosis Research Foundation
instead, then this will contribute to research to improve
knowledge and treatments of endometriosis, and wil benefit
everyone suffering from endometriosis! |
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Lone Hummelshoj
Publisher/Editor-in-chief
Lone created endometriosis.org in February 2005
and, with a great team, has turned it into a
global forum for news and information. She is
well known as an advocate in the field of endometriosis,
in particular for her work in getting the disease
recognised in the European Parliament and European
Commission. Lone co-founded the Danish Endometriosis
Society in 1997, chaired it for seven years,
and was instrumental in the implementation of
the first ever national legislation, which provides
referral guidelines to specialist centres for
the treatment of endometriosis. She is active
in the ESHRE and ASRM Special Interest Groups
on Endometriosis; Secretary General of the World
Endometriosis Society; and Chief Executive of
the World Endometriosis Research Foundation.
Lone speaks at medical conferences around the
world, and has published extensively on the
impact of endometriosis.
Lone runs her own business development consultancy
firm in London, England.
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Brendan Booth
Webmaster
Brendan makes it all happen.
He designed this website, updates it, and sends
out the monthly newsletters. He would really
prefer to ride his motor bikes - all the time!
However, since learning about endometriosis
he has become committed to our quest of providing
free information about endometriosis to women
across the globe. He is a great sparring partner,
and makes sure that we keep on track!
Brendan is a professional web designer and resides
in Christchurch, New Zealand. |
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Ros Wood
Associate editor
Ros has that amazing knack
of writing a technical article so that we can
all understand it. An endometriosis-sufferer
herself, she co-founded the Endometriosis Association
(Victoria) in 1984 and co-wrote Explaining
Endometriosis. Ros' passion has always
been to research endometriosis from a consumer's
point of view, and then provide evidence based,
yet easy-to-understand, information to aid women
in making informed decisions about the management
of their disease. Ros would rather be bi-cycling
around Europe right now, but has committed herself
to fight the endometriosis treatment approach
from short-term crisis management to long-term
control and stablity through individual treatment
plans.
Ros is a professional health writer who resides
in Tasmania, Australia. |
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Ellen T Johnson
Freelance writer
When Ellen saw a need, she
filled it by writing. When she had to endure
a "bowel prep" the night before her
first endometriosis surgery without a clue or
a single baby wipe, she knew she had to give
other women tips for getting through it more
easily! She has continued to provide this website
with articles on almost every single aspect
of "coping with endometriosis". A
former support group leader, Ellen's theory
about getting through health challenges was:
put one foot in front of the other, take it
one day at a time, choose hope above all other
alternatives, and pray. She contributed extensively
to this website with her useful and humerous
advice.
Ellen died from cancer on 11 November 2007
- Remembrance Sunday. She will be sorely missed
in the endometriosis community, but we will
always remember her.
>> In memoriam
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Eddie Ma
Freelance Writer
Ed discovered this web site
with his fiance Cara Tucker while they were
looking for more information about endometriosis
for an awareness display board they put together
at the University of Guelph. Since then, Ed
has pulled in his education at Guelph in the
biomedical sciences to write on various journal
topics about endometriosis. Ed's concern about
endometriosis stems from his love, who is a
woman with endometriosis. Cara and Ed are both
part of an endometriosis support group in Guelph,
and Ed has aspirations to do research in reproductive
endocrinology elsewhere when he finishes his
degree at Guelph. Ed and Cara have chosen to
be part of the solution to endometriosis in
their own small way.
Ed is a student of the biomedical
and bioinformatic sciences at the University
of Guelph, Canada. |
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We
are grateful to the following specialists
in endometriosis, infertility and
reproductive medicine, who have contributed
to the website by reviewing our articles.
They help us to ensure that the information
we provide is as up to date and factual
as possible: |
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| Serdar
Bulun MD PhD |
Professor
Northwestern University, Chicago, USA |
| Michael
East MD |
Consultant
Gynaecologist
Oxford Clinic, Christchurch, New Zealand
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| John
Dulemba MD |
Clinician
The Women's Centre, North Texas University,
Denton, USA |
| Juan
Garcia Velasco MD |
Gynaecologist
IVI Madrid, Spain |
| Stephen
Kennedy MD |
Clinical
Reader/Honorary Consultant and Head
of Department
Oxford University, United Kingdom |
| Philippe
Koninckx MD PhD |
Professor
of Obstetrics and Gynaecology, Leuven
University Hospital, Belgium; Visiting
Professor and Honorary Consultant, Oxford
University, United Kingdom; Visiting
Professor, Università Cattolica
del Sacro Cuore, Roma, Italy. |
| Bruno
Lunenfeld MD |
Professor
Emeritus
Bar Ilan University, Israel |
| Peter
Maher MD |
Associate
Professor
Mercy Hospital for Women, Melbourne,
Australia |
| Dan
Martin MD |
Professor,
Department of Obstetrics and Gynaecology
University of Tennessee Health Science
Center, Memphis, USA |
| Mette
Haase Moen MD |
Associate
Professor and Senior Consultant
Tronheim University Hospital, Norway |
| Marc
Possover MD |
Professor
of Obstetrics and Gynaecology
St Elisabeth Hospital, Köln, Germany |
| Andrew
Prentice MD |
Senior
Lecturer and Consultant Gynaecologist
Cambridge University, United Kingdom |
| Karl-Werner
Schweppe MD |
Professor
and Head of Department
Ammerland Clinic, Germany |
| Tamer
Seckin MD |
Chief
of Gynaecology and Minimally Invasive
Surgery
Kingsbrook Jewish Medical Centre, New
York, USA |
| Martin
Sillem MD |
Doctor
Med, Department of Obstetrics and Gynaecology
Kreiskrankenhaus Emmendingen, Germany |
| Anastasia
Ussia MD |
Chief
of Gynaecology
Villa Giose Clinic, Crotone, Italy |
| Paolo
Vercellini MD |
Associate
Professor
University of Milano, Italy |
| Hugo
Verhoeven MD |
Head
of Reproductive Medicine
Med-Plus Krefeld, Germany |
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We regret
that we do not have the resources to answer individual questions
about endometriosis, and would ask you to please seek out
our section which covers FREQUENTLY ASKED
QUESTIONS - you will get most of your answers there!
However, please do not hesitate to contact
us if you cannot find answers to your questions on this
website, if you have questions about the website, or if you
wish to contribute to our work. |
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| Please
read the disclaimer |
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We comply with the
HONcode
standard
for trustworthy
health information:
verify
here.
RECIPIENT
OF THE
2007 CUSTOMER SERVICE INNOVATION AWARD
RECIPIENT OF THE
2007 HOPE AWARD




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