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Welcome to endometriosis.org

Endometriosis.org is the global platform, which links all stakeholders in endometriosis, and facilitates collaboration and information sharing between women with endometriosis, physicians, scientists, and others interested in the disease.

This international collaboration and exchange of experience enables us to deliver up to date, evidence based, information and news about endometriosis.

Our goal is to empower women with endometriosis to participate fully in making informed decisions about their treatment options.

Endometriosis.org is not for profit.

The income generated from Google ads, Amazon.com referrals, and any other advertising, is used to pay for the hosting of the site, updates, and general maintainance. This enables us to provide a free informational service to women with endometriosis anywhere in the world.

See also our advertising policy and our strict copyright policy.


 
We will never charge anyone for obtaining information from this website. However, if you would like to make a donation to the World Endometriosis Research Foundation instead, then this will contribute to research to improve knowledge and treatments of endometriosis, and wil benefit everyone suffering from endometriosis!

The team behind the site


Lone Hummelshoj
Publisher/Editor-in-chief

Lone created endometriosis.org in February 2005 and, with a great team, has turned it into a global forum for news and information. She is well known as an advocate in the field of endometriosis, in particular for her work in getting the disease recognised in the European Parliament and European Commission. Lone co-founded the Danish Endometriosis Society in 1997, chaired it for seven years, and was instrumental in the implementation of the first ever national legislation, which provides referral guidelines to specialist centres for the treatment of endometriosis. She is active in the ESHRE and ASRM Special Interest Groups on Endometriosis; Secretary General of the World Endometriosis Society; and Chief Executive of the World Endometriosis Research Foundation. Lone speaks at medical conferences around the world, and has published extensively on the impact of endometriosis.

Lone runs her own business development consultancy firm in London, England.



Brendan Booth
Webmaster

Brendan makes it all happen. He designed this website, updates it, and sends out the monthly newsletters. He would really prefer to ride his motor bikes - all the time! However, since learning about endometriosis he has become committed to our quest of providing free information about endometriosis to women across the globe. He is a great sparring partner, and makes sure that we keep on track!

Brendan is a professional web designer and resides in Christchurch, New Zealand.


Ros Wood

Freelance writer

Ros has that amazing knack of writing a technical article so that we can all understand it. An endometriosis-sufferer herself, she co-founded the Endometriosis Association (Victoria) in 1984 and co-wrote Explaining Endometriosis. Ros' passion has always been to research endometriosis from a consumer's point of view, and then provide evidence based, yet easy-to-understand, information to aid women in making informed decisions about the management of their disease. Ros would rather be bi-cycling around Europe right now, but has committed herself to fight the endometriosis treatment approach from short-term crisis management to long-term control and stablity through individual treatment plans.

Ros is a professional health writer who resides in Tasmania, Australia.


Ellen T Johnson
Freelance writer

When Ellen saw a need, she filled it by writing. When she had to endure a "bowel prep" the night before her first endometriosis surgery without a clue or a single baby wipe, she knew she had to give other women tips for getting through it more easily! She has continued to provide this website with articles on almost every single aspect of "coping with endometriosis". A former support group leader, Ellen's theory about getting through health challenges was: put one foot in front of the other, take it one day at a time, choose hope above all other alternatives, and pray. She contributed extensively to this website with her useful and humerous advice.

Ellen died from cancer on 11 November 2007 - remembrance Sunday. She will be sorely missed in the endometriosis community, but we will always remember her.

>> In memoriam


Eddie Ma
Freelance Writer

Ed discovered this web site with his fiance Cara Tucker while they were looking for more information about endometriosis for an awareness display board they put together at the University of Guelph. Since then, Ed has pulled in his education at Guelph in the biomedical sciences to write on various journal topics about endometriosis. Ed's concern about endometriosis stems from his love, who is a woman with endometriosis. Cara and Ed are both part of an endometriosis support group in Guelph, and Ed has aspirations to do research in reproductive endocrinology elsewhere when he finishes his degree at Guelph. Ed and Cara have chosen to be part of the solution to endometriosis in their own small way.

Ed is a student of the biomedical and bioinformatic sciences at the University of Guelph, Canada.


 Peer reviewers

We are grateful to the following, who have contributed to the website by reviewing our articles. They help us ensure that the information we provide is as up to date and factual as possible:
 
Serdar Bulun MD PhD Professor
Northwestern University, Chicago, USA
Michael East MD Consultant Gynaecologist
Oxford Clinic, Christchurch, New Zealand
John Dulemba MD Clinician
The Women's Centre, North Texas University, Denton, USA
Juan Garcia Velasco MD Gynaecologist
IVI Madrid, Spain
Stephen Kennedy MD Clinical Reader/Honorary Consultant and Head of Department
Oxford University, United Kingdom
Philippe Koninckx MD PhD Professor of Obstetrics and Gynaecology, Leuven University Hospital, Belgium; Visiting Professor and Honorary Consultant, Oxford University, United Kingdom; Visiting Professor, Università Cattolica del Sacro Cuore, Roma, Italy.
Bruno Lunenfeld MD Professor Emeritus
Bar Ilan University, Israel
Peter Maher MD Associate Professor
Mercy Hospital for Women, Melbourne, Australia
Dan Martin MD Professor, Department of Obstetrics and Gynaecology
University of Tennessee Health Science Center, Memphis, USA
Mette Haase Moen MD Associate Professor and Senior Consultant
Tronheim University Hospital, Norway
Marc Possover MD Professor of Obstetrics and Gynaecology
St Elisabeth Hospital, Köln, Germany
Andrew Prentice MD Senior Lecturer and Consultant Gynaecologist
Cambridge University, United Kingdom
Karl-Werner Schweppe MD Professor and Head of Department
Ammerland Clinic, Germany
Tamer Seckin MD Chief of Gynaecology and Minimally Invasive Surgery
Kingsbrook Jewish Medical Centre, New York, USA
Martin Sillem MD Doctor Med, Department of Obstetrics and Gynaecology
Kreiskrankenhaus Emmendingen, Germany
Anastasia Ussia MD Chief of Gynaecology
Villa Giose Clinic, Crotone, Italy
Paolo Vercellini MD Associate Professor
University of Milano, Italy

We regret that we do not have the resources to answer individual questions about endometriosis, and would ask you to please seek out our section which covers FREQUENTLY ASKED QUESTIONS - you will get most of your answers there!

However, please do not hesitate to contact us if you cannot find answers to your questions on this website, if you have questions about the website, or if you wish to contribute to our work.

 
Please read the disclaimer

 



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2007 CUSTOMER SERVICE INNOVATION AWARD


RECIPIENT OF THE
2007 HOPE AWARD