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Endometriosis
UK launches its new poster campaign, Bloody
Hell
Using a sub-theme of “what if”,
this hard hitting campaign asks:
- WHAT IF sex was so painful
you would do anythying to avoid it?
- WHAT IF you stopped arranging
to meet the girls, because you knew you'd
probably have to cancel?
- WHAT IF the pain and discomfort
of a period went on all month, every month?
- WHAT IF your employer thinks
you'r skiving when you're in the ladies doubled
up in pain?
The campaign
aims to show how endometriosis truly affects
the day-to-day lives of women, and to raise
more awareness of the impact of the disease.
During Endometriosis
Awareness Week, representatives of Endometriosis
UK also presented to MPs in the UK Parliament,
where a new Early
Day Motion (EDM) on Endometriosis has been
tabled - if you live in the UK, then please
urge your MP to sign the EDM! |
A fundraising event was hosted by TeleCity
RedBus and photographer Klarke Caplin. Ms
Caplin displayed her photographs of women
with endometriosis shot in "Hitchcock
Movie Style" and raised thousands of
pounds for Endometriosis UK. The event was
picked up with a 3/4 page feature in Metro
(an estimated million readers).
To see (or buy) Klarke Caplin's photographs
CLICK
HERE (and then click on "1 in 10
Women").
For more information contact
Endometriosis UK
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First
Brazilian awareness campaign brings thousands
together
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2,500 women with endometriosis attended the
1st Brazilian Endometriosis Awareness Campaign,
which took place on 11 March at Ibirapuera Park
in São Paulo, where ten thousand informational
folders were distributed.
45 doctors,
including professors and residents, were at
the disposal of the female public to answer
questions about endometriosis and to point women
in the right direction for appropriate treatment
of symptoms.
It´s
estimated that around 6 million women suffer
from endometriosis in Brazil.
One of the
key organisers, Professor Mauricio Abrao, comments:
"The
mis-information, which we still see too much
of, is the main reason why such a great number
of Brazilian women fall victims of endometriosis
and why they do not receive
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appropriate care. This is why the
principal aim of this Campaign is to offer
information to the public through events like
today and via the media".
The next step is trying to get the Health
Authorities involved, giving governmental
support to the Campaign, creating the Endometriosis
National Day and also making the disease to
be considered a case of Public Health, due
to its expressive numbers.
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Providing
information
and support on the day |
The
team in Ibirapuera Park
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The Campaign, which is ongoing, is organised
by NEPE (Interdisciplinary Nucleus of Education
and Research in Endometriosis) and ABEND (Brazilian
Endometriosis Support Organisation) and has
been supported by en educational grant by
AstraZeneca.
Says professor Abrao: "This
campaign can help to reduce the time between
the beginning of the symptoms and the diagnosis
of endometriosis in our country".
For more information see
www.endometriose.org.br
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Support
group launches in Belgium
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The first Belgian Endometriosis Support Organisation
was launched on 10 March at a joint meeting
between Endometriose Stichting Nederlands and
Leuven University Hospital, Belgium.
The one day seminar also brought
women with endometriosis and physicians together
to explore the best ways in which to deal with
the long term management of endometriosis.
Says Bianca de Bie, president of Endometriose
Stichting Netherlands:
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“We are delighted to be able
to help women in Belgium to start their society,
and are excited that Belgian physicians are
supporting our initiative".
Professor Thomas D’Hooghe,
who hosted the seminar, and who also chairs
ESHRE's Special Interest Group on Endometriosis,
responded: “As physicians it is
very important that we work closely with the
patient community to address the impact which
endometriosis can have on a woman’s life.
Because of its chronic nature, it is vital that
treatment is carried out by endometriosis specialists
within centres/networks of excellence, which
has the capability to address the disease in
a multi-disciplinary way. The ESHRE
Guideline for the Diagnosis and Management of
Endometriosis provides the most up to date
evidence on the treatment of the disease, and
I encourage all my colleagues to be familiar
with this guideline.
For more information about
Endometriose Stichting Belgium see www.endometriose.be
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Seminar
in the European Parliament brings stake holders
together to tackle endometriosis
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Legislators,
physicians and women with endometriosis from
across Europe came together at a lunch seminar
on 28 March, hosted by Diana Wallis MEP, vice-president
of the European Parliament.
Calls were
made for more investment into awareness campaigns,
the need for endometriosis to be treated by
specialists, and investment into causal research
so that one day endometriosis can be prevented.
>>
read more
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