AIE Milano group has launched a creative competition
MARCH 2009: The Associazione Italiana Endometriosi (AIE) Milano group has launched a creative competition entitled "Endometriosis, what I KNOW about me", to raise awareness of endometriosis from the point of view of those that live with the condition.
Associazione
Italiana Endometriosi (AIE) and Italian Health Ministry launch information campaign
FEBRUARY 2009: After years of lobbying by the AIE the Italian Healthy Ministry has launched a national campaign "What I don't know about myself" to raise awareness of endomtriosis.
New support group is launched in Switzerland
FEBRUARY 2009:
Selbsthilfezentrum has launched in Switzerland and has embarked on their first poster campaign to raise awareness of endometriosis.
New support group is launched in Poland
JANUARY 2009:
Stowarzyszenie Endometrioza has launched in Poland as a national charity to support women with endometriosis.
Finnish Endometriosis Society shares 2008 highlights
DECEMBER 2008:
Endometrioosiyhdistys has had a progressive year in 2008 and are now busy preparing for their 10th anniversary in 2009.
Endometriosis
UK raises more than £8,000 in the London Marathon!
APRIL 2008: Endometriosis UK was granted its first place
in the 2008 London Marathon, where runner, Neil Kelly,
raised more than £8000 for the charity!
Press
Conference by AIE and SIGO launches Awareness Week in
Italy
FEBRUARY 2008: The Associazione Italiana Endometriosis
(AIE) in collaboration with the Italian Society of Gynaecologists
and Obstetricians (SIGO) held a press conference in
Rome on 26 February to officially launch Awareness week.
Endometriosis
UK has been granted its first place in the London Marathon
FEBRUARY 2008: This is an opportunity to push endometriosis
into the public eye and generate much-needed funds to
raise further awareness of this debilitating disease.
Please support runner Neil Kelly!
Associazione
Italiana Endometriosi (AIE) shares its recent
achievements and milestones
DECEMBER 2007: AIE has made tremendous strides
in Italy over the past year. They share their
achievements and milestones with everyone for
inspiration and encouragement.
Associazione
Italiana Endometriosi (AIE) returns to the Italian
Senate
MAY 2007: Associazione Italiana Endometriosi
(AIE) presents a proposal to the Italian Senate
for a law to safeguard the rights of women affected
by endometriosis.
European
Commission grants funding for endometriosis
work in Europe
MAY 2007: Historic funding from the European
Commission provides encouraging news for millions
of women whose lives are affected by endometriosis.
Associazioen
Italiana Endometriosi (AIE) Onlus celebrates
eight years of results
APRIL 2007: At its annual general meeting held
on Saturday 14 April 2007 Associazione Italiana
Endometriosi (AIE) celebrated the enormous progress
it has made during the last eight years.
European
Parliament brings stake holders together to
tackle endometriosis
MARCH 2007: Legislators, clinicians, scientists
and women with endometriosis in Europe came
together in the European Parliament on 28 March
to call for more investment into causal research.
First
Endometriosis Support Group launches in Belgium
MARCH 2007: Belgian Endometriose Stichting launches
on 10 March at a seminar at Leuven University
Hospital, with support from the Dutch colleagues.
Endometriosis
UK launches hard-hitting awareness campaign
MARCH 2007: Using a sub-theme of “what
if”, the BLOODY HELL campaign asks how
life would be if sex were so painful it became
both a physical barrier and an intolerable strain
on a relationship, and how you would cope if
your social life virtually ground to a halt
because of an illness?
New
image and name for Endometriosis UK
NOVEMBER 2006: The National Endometriosis Society
in the UK has changed its name to Endometriosis
UK to sharpen the its image
and to strengthen its branding, clearly identifying
what the charity is about.
British
Medical Association awards prize for endometriosis
teenage booklet
OCTOBER 2006: The BMA have awarded their prestigious
Patient Information Award for 2006 to the Endometriosis
SHE Trust (UK) for their teenage information
booklet.
UK
National Endometriosis Society celebrates 25
years
JULY 2006: Ailsa Irving, who founded the NES
25 years ago, shares her memories of how it
was to start a society in 1981 (before the Internet).
This is wonderful reading, where lots of women
are recognised for the early efforts of getting
a national support organisation up and running!
New
law in Spain allocates more money to investigate
endometriosis
JUNE 2006: The Spanish Congress of Representatives
has unanimously approved the allocation of more
money to the fight against endometriosis following
a proposal of law instigated by Asociacion de
Endometriosis Española.
European
Council conclusions for
women's health in Europe accepted by all Member
States
JUNE 2006: The Council of
the European Union has formally recognised the
need that more attention is given to women's
health issues - and endometriosis is again highlighted
as a disease which deserves specific attention!
New endometriosis
support organisation started in Malta
JUNE 2006: The first meeting of the Maltese
Endometriosis Society took place on 30 June
2006. Their next meeting is on 29 September
2006.
Endometriosis
Awareness Week creates noise, light and hope!
MARCH 2006: National support groups were heard
during Endometriosis Awareness Week, and had
support in their efforts from the European Parliament.
Historic
decision for women's health made by the European
Commission
FEBRUARY 2006: The EU's move to include endometriosis
in its Public Health Programme for 2006 could
lead to better diagnosis, treatment and care
for women with the disease.
Austrian
Health Minister urges more awareness for endometriosis
JANUARY 2006: Maria Rauch-Kallat, Federal Minister
for Health and Women in Austria will focus on
women’s health, and endometriosis in particular,
during the Austrian EU presidency in 2006.
Conclusion
of investigation by the Italian Senate into
endometriosis as a social disease
JANUARY 2006: This investigation has been an
important step forward towards the official
recognition of endometriosis, the need for improved
therapeutic options, as well as economic aid
to women with endometriosis. This a huge
step forward for women with endometriosis!
Announcement
of results from pan-European pain and quality
of life study
SEPTEMBER 2005: The EEA translated this study
into Danish, Dutch, English, Finnish, French,
Norwegian and Swedish. 7,025 women with endometriosis
completed the questionnaire, which showed an
average diagnostic delay of over eight years,
with 65% originally being misdiagnosed with
another condition.
Endometriosis
is highlighted in the European Parliament
SEPTEMBER 2005: Diana Wallis MEP highlighted
the plight of women with endometriosis as part
of a report on gender discrimination in health
systems, which was debated in the European Parliament
on 7 September 2005.
Written
Declaration on Endometriosis
JUNE 2005: A targetted lobbying campaign by
the EEA, along with physicians across Europe,
resulted in 266 MEPs supporting the European
Parliamentary Written Declaration on Endometriosis
seeking a significant increase in funds and
awareness in the EU for endometriosis. This
is the highest number of signatures achieved
for a health issue and the sixth most successful
Written Declaration since 1998.
Associazione
Italiana Endometriosis and Italian gynaecologists
make history
JUNE 2005: Specialists in all areas of medicine,
women with endometriosis, journalists, and legislators
all came together on 22-25 June to focus on
the disease as a social issue, not only as a
medical one. On 28 June 2005, the Italian Senate
voted in favour of the first act of the bill
that will recognise endometriosis as a social
disease!
Meetings
with the European Parliament and the European
Commission
MARCH/APRIL 2005: Representatives of the EEA
met with members of the European Parliament
and the European Commission to discuss the need
for increased awareness of the disease and investment
into research for the cause and prevention of
endometriosis. These meetings led to the launch
of the Written Declaration on Endometriosis.
Support
groups across Europe make headlines during Endometriosis
Awareness Week
MARCH 2005: Endometriosis Support Groups in
Europe simultaneous arranged awareness and informational
events in Austria, Denmark, Finland, France,
Germany, Ireland, Italy, The Netherlands, Norway,
Portugal, Spain, Sweden, and the United Kingdom.
The theme for Awareness Week 2005 was making
a difference at grass roots level for women
with endometriosis and those that care for them
to play an active role in their communities.
Never before have so many national support groups
collaborated in raising awareness of endometriosis
simultaneous - and it paid off!
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