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Endometriosis Awareness Week in Europe is 6 - 12
March 2006, and in the United States it is for the
entire month of March.
However, activities have been planned in many countries
to raise awareness of endometriosis throughout 2006.
Stay tuned to this page for continuous updates on
what is happening at grass root level in endometriosis!
| AUSTRIA
- Frau sein - Gesund sein |
9 March 2006, 19.00
Schmerzen im Unterbauch können
die unterschiedlichsten Ursachen haben:
von "harmlosen" Menstruationsbeschwerden
bis zu gefährlichen Entzündungen
z. B. der Gebärmutterschleimhaut
oder der Eierstöcke. Wo liegen
die Ursachen? Wann ist ein Arzt aufzusuchen?
Wann ist ein operativer Eingriff notwendig?
Die neuesten Informationen aus Wissenschaft
und Praxis der Frauenheilkunde.
Für
Details klicken Sie hier!
11 March 2006, 10.00
- 17.00
Auch heuer freut sich die Österreichische
Endometriose Vereinigung Sie recht
herzlich zum
2. Österreichischen Endometriose
Tag im Sky Dome des Wr. Hilfswerks in
1070 Wien Schottenfeldg. 29/2 einladen
zu dürfen!
Für
Details klicken Sie hier!
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| AUSTRALIA |
4 March 2006
Support group meetings in Brisbane and
the Gold Coast.
7 March 2006, 19.00
Information seminar at the Wesley Hospital
Auditorium, Chasely Street, Auchenflower.
We are very proud to be a part of International
Endometriosis Awareness week 2006!
For further details on our events,
please log on to Endometriosis
Association (Qld)
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| FINLAND |
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7 March 2006
Pain and endometriosis will be adressed
by Dr Merja Metsä-Heikkilä
in the Diana-auditorium, Erottajankatu
5, Helsinki
Endometrioosiyhdistys ry järjestää
kaikille avoimen yleisöluennon
Helsingissä 7. maaliskuuta klo
19.00 alkaen Diana-auditoriossa, Erottajankatu
5. Tilaisuudessa luennoi LT Merja Metsä-Heikkilä
aiheesta Kivuliaat kuukautiset? Endometrioosi?
Tilaisuudessa kerrotaan myös potilasjärjestön
toiminnasta. Vapaa pääsy.
Tervetuloa.
For more information please contact
Endometrioosiyhdistys
Finland
Endometrioosiyhdistys have more planned:
- letters will be mailed to all gynegological
clinics in Helsinki and its vicinity
- materials will be mailed for school
nurses
- a press kit has been prepared and
the media is being contacted
- Endometrioosiyhdistys will also organise
a public lecture in the Turku area on
Apri
- Endometrioosiyhdistys plan two more
public lectures in northern part of
Finland in the autumn.
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| FRANCE
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During Endometriosis Awareness Week
there will be an Art exhibition in
Toulouse about gynaecological pain
and endometriosis - one of Endo
France's old friends, who is a
painter and only paints about endometriosis,
will participate and provide teenagers'
pictures as well.
During this
week, women in Rennes will participate
with either a show room or a conference
on endometriosis.
7 March 2006
Medical conference for patients
in Montpellier with Dr Dechaud
7 March
2006
Medical conference for patients
in the Hospital of Angers with Pr
Descamps (he recently joined the scientific
committee of Endo
France, which wises to thank him
for inviting them to participate and
thanks to him we participated in December
at a gynaecological training for GPs
where we had 20 minutes to raise awareness)
9 March
2006
A debate with Professor Chapron at
Hospital Cochin, Paris, with patients.
This debate will be coordinated by
well-known journalist, Brigitte Fanny
Cohen, who participated in several
discussions with the French government
about fertility.
11 March 2006
Support group meeting in Montpellier
For more information about each event,
please contact Endo
France.
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| ITALY |
The list that follows includes some of
the activities that the Italian
Endometriosis Association (AIE) has
undertaken or planned for 2006. It should
be understood that it is by no means a
comprehensive list.
Forum:
Jacqueline Veit, AIE President has participated
in a Forum with various specialists including
gynaecologists, urologists, gastroenterologists
and general practitioners. An account
of the discussion is to be published in
a scientific magazine distributed to 25,000
GP’s.
Pharmacies: AIE brochures
have been distributed by 84 pharmacies
in and around Milan.
Sardinia: A new support
group has been launched on the beautiful
island of Sardinia. In collaboration
with Prof. Giambattista Melis invitations
to the meeting and AIE informative material
was sent to over 700 women.
Conference: The Policlinic
S.Orsola-Malpighi (Bologna) has organized
a conference open to the general public:
“Endometriosis a social disease.
Physicians and patients debate. Everything
women would like to know”. During
the event the AIE will have a booth
to display and distribute informative
material and Jacqueline Veit and Monica
Neri will be key-note speakers presenting
what it means to live with endometriosis
and the role and importance of the AIE.
The World Meeting on Gynecological
Pelvic Pain and Endometriosis:
The AIE are very proud to be organising
their own symposium “The Italian
Endometriosis Association as a support
to the patient” during this important
international appointment. The aim of
which is to face, together with different
specialists, the issues related to pelvic
pain and particularly to endometriosis,
to introduce new diagnostic techniques
and propose new therapeutics aids. Eminent
international specialists in the field
have been invited to participate in
the symposium, which is open to members,
physicians and the general public. See
also: The
World Meeting on Gynaecological Pelvic
Pain and Endometriosis
Congress: In collaboration
with the Società Italiana Contraccezione
and the Società Italiana Menopausa,
the Associazione Italiana Endometriosi
is organizing a congress in Sardegna
“Endometriosis, contraception,
menopause”. Jacqueline Veit, President
AIE will be one of the co-presidents
of the congress. A whole day will be
dedicated to endometriosis during which
there will be various sessions and a
roundtable. The AIE will also display
and distribute materials at their booth
for the duration of the congress.
Meetings: The AIE has
arranged a series of informative meetings
open to the public with the participation
of expert speakers.
Media: In addition
to articles on endometriosis in magazines,
national and local press, various representatives
of the AIE have given TV and radio interviews.
Table displays: During the entire Endometriosis
Awareness Week the AIE will have table
displays throughout Italy where volunteers
will be providing informational literature
to the public.
Poster: In order to encourage as many
people as possible to give a hand in
promoting awareness the AIE has created
an awareness poster that can be downloaded
and printed out from their web-site.
Leaflet campaigns: members, physicians
and general public are all encouraged
to distribute AIE leaflets.
Senate: Through the
work of the AIE and Italian gynaecologists
the Italian Senate have approved the
final document to recognize endometriosis
as a social disease. See also: Conclusion
of investigation by the Italian Senate
into endometriosis as a social disease
Educational efforts:
The AIE is continuing it’s highly
successful adolescent project and has
so far spoken to approximately 1,000
secondary school students. It has also
gathered data through a specifically
designed questionnaire.
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| PORTUGAL
- one candle
for pain/endometriosis |
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3 March 2006
For the first anniversary
of Associação
Portuguesa de Endometriose (Aspoendo)
there will be a dinner with all the
people who supported the organisation
in 2005
8 March 2006
A public presentation of by Aspoendo
to the media and general population
with cocktailsl in a hotel in Lisbon.
To participate please contact Associação
Portuguesa de Endometriose
8/9 March 2006
In the centre of Lisbon, Aspoendo will
have a big cake with 700 candles (representing
700,000 women in Portugal with endometriosis),
and we will invite the women to blow
out a candle (this represents for each
candle blow = one Portuguese woman without
pain and endo), emphasising our campaign:
ONE CANDLE FOR A PAIN/ENDOMETRIOSIS
For more information of these events,
please contact Associação
Portuguesa de Endometriose
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| PUERTO
RICO |
26 March 2006 9.00-14.00
1er Encuento Feminino Batalla
la Endometriosis
We will celebrate March, Endometriosis
Month, in Puerto Rico, by conducting
a patient gathering that will include
an educational program, health clinics,
presentation of products and services,
music and activities for the kids. Also,
it is expected that the same day senator
Lucy Arce will talk about a law naming
March as the endometriosis awareness
month in Puerto Rico and thereby recognizing
this disease as an important one in
our country. Among the topics that will
be covered during the educational program
are: The Puerto Rican Endometriosis
Foundation: Mission and Purposes, Treatment
Alternatives for Infertility, Acupuncture
and Reiki, Laboratory Tests for Endometriosis.
Para informacion:
787 840 2575 x2206.
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| SWEDEN |
9 March 2006
Annual Meeting for the local
organisation in Stockholm with doctor
Christine Bruse.
11 March 2006
Annual meeting in Malmö with doctors
from Universityhospital MAS.
Throughout Endometriosis Awareness
week, there will be local meetings taking
place in several places in Sweden, as
well as information campaigns and activities.
For more information please contact
Svenska
Endometriosföreningen.
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| SWITZERLAND |
9. März 2006 15:30- 18:00
Hörsaal 3 Medizin, Inselspital,
3010 Bern
Thema: Zyklusabhängige Beschwerden
und deren Therapie:
- Rhythmus und Takt- Überlegungen
zu einer integriert-psychosomatischen
Sicht von zyklus-assoziierten Befindlichkeitsstörungen
-Der Lang-Zyklus zur Behandlung zyklusabhängiger
Beschwerden: Möglichkeiten und
Grenzen
-ENDOMETRIOSE:Diagnose bei Zyklusabhängigen
Schmerzen
-Seltenere Zyklusabhängige Beschwerden-
welche Therapiemöglichkeiten haben
wir heute?
Für
Details klicken Sie hier!
21. Maerz 2006, 20:15 bis 21:15
Endometriose - die verkannte Frauenkrankheit
Oeffentlicher Vortrag, Dienstag, 21.
Maerz 2006, 20:15 bis 21:15,
Grosser Hoersaal (Haus 21), Kantonsspital,
9007 St, Gallen
Referenten: Dr. Felix Haeberlin, Dr.
Remo Lachat, Dr. Katrin Breitling,
Frauenklinik, Kantonsspital, 9007 St.
Gallen; e-mail: felix.haeberlin@fiore-ivf.ch
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6 March 2006
Women with endometriosis and their
families are gathering at 11.30 in
Parliament Square to raise awareness
of endometriosis.
At 12.30 representatives from the
National
Endometriosis Society
and the Endometriosis
SHE Trust will deliver a petition,
signed by more than 13,000 people,
to Downing Street.
7 March 2006 18.00-19.00
The Endometriosis All Party Parliamentary
Group will host a briefing in the
House of Commons, attended by Health
Minister Caroline Flint MP, to announce
the results of the Pain and Quality
of Life survey to MPs. For more information,
please contact the National
Endometriosis Society.
8 March 2006
The National
Endometriosis Society
has been invited to address
endometriosis during a "Women's
health" meeting, hosted by the
Conservative party in recognition
of International Women's Day. The
presentation will be given in the
presence of opposition leader, David
Cameron MP.
10 March 2006
In conjunction with Bournemouth University's
"Diversity week" on the
theme of gender issues, women's health,
pain management and endometriosis,
local support group PEGASUS has organised
a panel representing various perspectives
including gynaecology, pain specialists,
pain research, psychology, trade union,
industry, and patients. It will be
introduced by the local MP and PEGASUS
has invited panel representation from
outside of the UK. For more information
please contact PEGASUS
6 - 12 March 2006
Members of the Endometriosis
SHE Trust have each been sent
five posters to take to their GPs,
chemists, local library, health food
shop and schools, and to contact their
local papers about these activities.
They have also been encouraged to
dostribute their VICTORIA teen leaflet
to secondary school nurses. To obtain
posters and leaflets, please contact
Endometriosis
SHE Trust.
During Endometriosis Awareness week,
SHE Trust members have been asked
to hold a T-4-£2 event again
this year and have been given a free
teabag to start them off!
The National
Endometriosis Society's
support groups are staging local awareness
events across the country. See www.endo.org.uk
for more details.
4 - 13 March 2006
Representatives of the National
Endometriosis Society
will trek CUBA
during endometriosis awareness week
to raise funds for the Society. This
is the second major challenge the
Society has set, following the successful
climb of Kilimanjaro in 2004.
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| UNITED
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The
Endometriosis Research Centre has
many initiatives planned for 2006, including:
o A collaboration with the Center for
Endometriosis Care, in Atlanta, to produce
an Awareness Presentation, which can
be obtained by calling +1 866 733-5540
o Adopt-a-Doctor: make a difference
and get doctors committed to endometriosis
click
here
o Fundraising: a t-shirt to help celebrate
Endometriosis Awareness Month March
2006! Proceeds from the sales of these
t-shirts will help the ERC to continue
its efforts in offering empowerment,
support and education to women who suffer
from endometriosis click
here to order
o Cook for the Cure! The ERC is extremely
excited to present its very own cookbook:
Down Home Cooking with Endo Sisters.
This cookbook was made possible
with recipe contributions from the Angel
Network Members and members of the ERC
ListServ. Click
here to submit your own recipe to
support this initiative!
The ERC will also undertake:
o Legislative and media campaigns;
o Continued educational efforts;
o Expert speaker chats.
Contact
the ERC for more information
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