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2005 has been proclaimed as "The Year of the
Volunteer".
National support groups
in Europe and North America are out in full force
arranging a huge variety of local, national and international
events on the two continents during March in order
to:
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raise awareness of endometriosis
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highlight the lackof general
information and subsequent delay in diagnosis and
treatment
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draw attention to the impact
of the disease on women, girls and their families.
This is happening through meetings, articles in the
press, and lobbying of politicians and legislators.
May 2005, through our joint activities, be the year
in which endometriosis is finally understood and treated
as the significant illness we know it to be. Let us
all participate and make a difference!
In Europe, Endometriosis Awareness Week is 7 - 13
March 2005.
Lone Hummelshoj (representing Endometriose Foreningen
in Denmark) and Robert Music (representing the National
Endometriosis Society in the UK) are presenting to
Members of the European Parliament in Strasbourg on
9 March on the impact of
endometriosis. A written declaration on endometriosis
will be launched that day, and subsequently presented
to the president of the European Parliament.
What can you do?
Please contact your local MEP and urge him/her
to attend the meeting in Strasbourg, room S3.5 on
9 March at 14.00-16.30, and ask them to sign the declaration.
The more signatures we get, the more endometriosis
will be taken serious!
You can also show your support
by participating in local and national events:
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| Denmark |
Endometriose
Foreningen has approached all 14 members
representing Denmark in the EU-Parliament and
urged them to attend the 9 March
meeting in Strasbourg. Their latest newsletter
has been sent to all members of the Parliamentary
Health Committee along with a press release
highlighting the socio-economic impact of endometriosis.
The press release has all been sent to leading
Danish newspapers, radio and TV-channels. Endometriose
Foreningen will be hosting a national members
meeting - for practical reasons that meeting
will be held on 2 April 13.00 - 17.00 at Glostrup
University Hospital, Copenhagen. Email
us for more information.
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| Finland |
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| France
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In
conjunction with the French college of Gynaecologists,
Association
EndoFrance is arranging a series
of meetings: On 7 March at 20.00
a conference at the University Hospital in d'Angers
will address "Endometriosis in 2005"
(email
Catherine or phone (+33) 06 98 75 31 92);
On 12 March 9.00 - 14.00
a conference at the University Hospital of Purpan
in Toulouse will address "How to live with
endometriosis in Midi-Pyrenees"(email
Martine or phone (+33) 06 19 42 41 58),
and there will also be a lunch meeting in Lyon
that day (contact
Magali). On 13 March there
will be a support group meeting in d'Angers
(email
Catherine or phone (+33) 06 98 75 31 92),
a lunch meeting in Poiters (contact
Céline), and a lunch meeting near
Paris (contact
Anne-Marie).
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| Germany
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In
connection with leading German gynaecologists,
Endometriose-Vereinigung
Deutschland will provide a telephone
hotline on 7 - 11 March, where
those with endometriosis can get straight answers
to their questions. Call us on (+49)
01803 983 983.
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| Ireland |
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In
addition to articles on endometriosis in magazines
and the local press, the Endometriosis
Association of Ireland are holding an Awareness
Day on 12 March at 14.00 - 18.00
in the Great Southern Hotel, Dublin Airport. Topics,
which will be addressed include infertility, dietary
measures, and acupunture. Email
us for more information.
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| Italy |
During the entire Endometriosis Awareness
Week the Associazione
Italiana Endometriosi Onlus (AIE) will have
table displays throughout Italy where volunteers
will be providing informational literature to
the public. On 8 March Jacqueline
Veit, President of the Associazione Italiana
Endometriosi will be speaking at “Endometriosis:
know it, face it with serenity” at the
Archivolto Theatre in Genova. Regional events
include: Parma – 6 marzo –
dalle ore 10 alle ore 17: Marisa,
Giulia ed Elisa vi incontreranno presso l'Ospedale
Maggiore di Parma con uno stand informativo
dove potrete avere tantissime notizie riguardanti
l’AIE e l’endometriosi. Sala
Baganza (PR) – 7 marzo – alle ore
20.30 è stato organizzato,
dal gruppo di auto-aiuto di Reggio Emilia in
collaborazione con la sezione locale dell’AVIS,
un incontro aperto alla cittadinanza, presso
la sala civica di via Garibaldi. Interverranno
due specialisti per parlare di "Endometrosi:
diagnosi, chirurgia e fertilità".
Genova - 8 marzo
– alle ore 18.00 la nostra Presidente
interviene alla serata "Endometriosi: conoscerla
meglio, affrontarla con armonia". La serata
si svolge al Teatro dell'Archivolto, Sala Mercato,
Piazza Modena 3. Per informazioni: 010 5957060.
Reggio Calabria – 10 marzo
– dalle ore 10.00 alle ore 17.00
il nostro stand sarà presso l’“Istituto
Clinico dott. R. De Blasi” in via Turrione
55 : Margherita e Natalia non vedono l’ora
di conoscervi! Messina – 12
marzo – dalle ore 10.00 alle ore 17.30
Natalia, Cinzia e Mariapaola vi aspettano allo
stand in piazza Duomo. Palermo –
12 marzo – dalle ore 10.00 alle ore 18.00
il nostro stand sarà al Giardinetto Inglese
con Anna e Florinda. Catania –
12 marzo – dalle 15.00 alle 19.00 Rosa
e Patrizia saranno con lo stand in via Etna,
di fronte a Villa Bellini. Castelfranco
Veneto (TV) – 12 marzo – dalle 9.00
alle 13.00 e dalle 14.30 alle 19.00:
veniteci a trovare presso il Centro Commerciale
"I giardini del sole". Email
us for more information.
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| The
Netherlands |
Endometriose
Stichting has arranged a national meeting
on 12 March in Zeist,
where professor Philippe Koninckx will speaking,
and a regional meeting in Rotterdam on 22
April. Email
us for more information. A book
on "experiences with endometriosis"
has been launched, and every gynaecologist in
The Netherlands will receive letters and brochures
urging them to help raise more awareness. Articles
have appeared in one magazine and several newspapers
already.
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Norway
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Endometrioseforeningen
announces their annual meeting
on 12 March at 11.00 at
Perminallen Hotel, Øvre Slotsgate 2,
Olso, where assistant professor Mette Moen
will talk about "The trends in treatment
and research of endopmetriosis during the
last 25 years". The department of health
will be in attendance, and a celebratory dinner
is planned after the meeting. Email
us for more information.
In addition, Norway's largest broad sheet
newspaper will be bringing an interview with
three members and highlighting the disease
and awareness week.
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| Sweden |
Svenska
Endometriosföreningen and EndoLiv
are arranging a joint information meeting on
12 March at 14.00-16.00 at
Ulllevi Konferenscenter in Göteborg. Dr
Margita Blomberg will be presenting on "Den
dolda kvinnosjukdomen" and Dr Barbro Eden
will respond to fertility-related questions.
Support groups across the country will arrange
local events. Email
us for more information.
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The East Sussex Endometriosis
Self Help Group is holding an Evening Buffet
on 10 March at 19.30 - 22.30 in
the Congress Suite at The Winter Gardens in
Eastbourne. The Lady Mayor will open this
event. Places, which cost £15.00/person,
are limited, so please
book your place now!
The National
Endometriosis Society will be featured
on two television programmes, alongside awareness
campaigns to other national and local media.
The Society’s members and volunteers
are running various awareness events that
week, such as its support groups running meetings
attended by MPs, local Mayors and gynaecologists.
Email us
for more information. In addition, there
will be leaflet campaigns in hospitals and
shopping centres and their members have spoken
to their local newspapers to ask them to run
a story during Awareness Week
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The
All Party Parliamentary Group on Endometriosis
are urging women and their loved ones to lobby
Members of Parliament in their constituency,
asking them to sign an Early Day Motion, to
join the Endometriosis All Party Parliamentary
Group and to campaign for improved coding
of endometriosis at primary and secondary
care and to sign a new petition that will
be launched on 8th March. Email
us for more information.
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In North America the whole month of March is recognised
as Endometriosis Awareness Month.
The Endometriosis
Association is encouraging women and families and
other supporters to wear yellow awareness ribbons and
distributing brochures wherever they can: to libraries,
community centers, women's health facilities, hospitals,
teachers, hairdressers, gyms, daycare centers, markets,
or other locations that will reach women and girls.
The Endometriosis Association will distribute literature
through its support groups and chapters. Ribbons in
English and French, and brochures (in 29 languages),
are available through Endometriosis Association headquarters.
Also in the month of March, awareness wristbands/bracelets
are available for US$1 each and in packs of 10, 25,
50, 100, 500. The Association will continue awareness
raising activities in October, when it celebrates its
25th anniversary with an informational conference in
Milwaukee, USA, on 7 - 8 October 2005. Email
us for more information.
Through the work of the Endometriosis
Research Center the United State Congress
unanimously passed the country's first-ever National
Endometriosis Awareness Resolution, H. Con. Res. 291
declaring March as Endometriosis Awareness Month, as
well as “strongly supporting the Endometriosis
Research Center's efforts to raise public awareness
of Endometriosis throughout the medical and lay communities,
and recognizing the need for better support of patients
with Endometriosis, the need for physicians to better
understand the disease, the need for more effective
treatments, and ultimately, the need for a cure."
They have also enjoyed many successes throughout the
states of Florida, California, Pennsylvania and Michigan.
Joining them in their legislative efforts this year
in honour of Awareness Month 2005 include, but are not
limited to, the state of California, with the passage
of an Endometriosis Awareness Resolution sponsored by
Assemblywoman Sharon Runner; the city of Lancaster,
California, with the passage of an Endometriosis Awareness
Proclamation; the state of Colorado, with both a Governor’s
Awareness Proclamation and the passage of Resolution
HJR05-1014, sponsored by Representative Kathleen Curry,
Representative Mark Larson, Senator Paula Sandoval and
many co-sponsors; and our headquarters state of Florida,
with the passage of an Endometriosis Awareness Resolution
sponsored by Representative Anitere Flores. Many are
repeat legislative supporters. Email
us for more information.
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